Cystic Fibrosis sufferers cannot keep waiting on treatment

At present, cystic fibrosis sufferers cannot access the most advanced medicines to aid their symptoms, Orkambi and Symkevi.   NHS England, NICE and Vertex Pharmaceuticals, the company which supplies the medicines, have not yet been able to agree a financial compromise.

That is why I have joined fellow MPs to write to both the Health Secretary and the CEO of Vertex to ask the government what else can be done in order to make sure cystic fibrosis sufferers get these drugs without delay by whatever means necessary.   Patients must not have to wait for life-changing treatment – and I expect to see a solution swiftly.

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